Summit life update

I think half the reason people check in on my blog is to see how Summit is doing. I’ve been very self centered lately, blah blah blah my surgery blah blah blah falling off a chair etc. etc. so I decided to fill you in on my sweet little bear.

Yesterday was his best day of therapy in awhile, all though a little whiny in occupational therapy, he did pretty good. He was helping “sew” one of those giant cards with shoelaces and was quite interested. In physical therapy he begrudgingly walked around with his walker on the tile floor for quite awhile then walked around the room holding onto just one finger! He would walk the quickest to the standing mirror, smiling at himself the whole way. His therapist said he looked like a model in a gap baby commercial which of course pleased me more than it should… however in speech he sunk a little. I realize that I have more readers than I think now which is weird and Ben said that I need to be careful what I write, but really, I’m not saying anything bad about his therapist, just Summit. :) He totally disrespects her, if he treated me like that I’d swat him. She is the kindest, sweetest person too, it make me sad how he takes advantage of her! She doesn’t know him well enough to know what he is doing. If he treated either of his other therapists that way they’d croak. He just IGNORES her the whole session. Over and over she’ll talk to him and call his name and he doesn’t respond. It’s almost comical. She’ll ask him to do something, he’ll refuse, she’ll make him, he protests, she claps for him after the task is completed like he did it on his own. and he knows! It’s almost like he’s intentionally doing the opposite of what she says sometimes, which in a bad way is sort of good b/c at least he is understanding… just not choosing to comply. I think I have a toddler on my hands people!

Other than his honryness (I’m getting nothing for spell check- seriously, how do you spell that?!) at speech therapy, he’s good! He’s been on a recent I-want-to-go-to-bed-at-11pm-and-get-up-at-10:30am kick which would be great for us if we didn’t have an outside world to deal with. I’m trying to force him to go to bed earlier but he stands up in his bed and screams. Since pretty much most of his not a newborn life he’s gone to bed pretty perfectly, I’ve been lax in this area and will get him up if he screams because that means he’s not sleepy yet. He’ll go happily usually a half hour after that. It works, or has worked. I’m a little stuck right now. Also, I’ve been going through his clothes from last year, party because a family friend has a surprise boy when they were told it was a girl (seriously people, don’t believe the ultrasounds! they are NOT 100%) and since God blessed me with people giving me so much when Summit was born I wanted to pass on some things and I realized that he fits some clothes from last fall! Honest to God, he’s wearing a jacket my mom bought for him that is size 6-12 months and jeans that are the same size! This is both good and bad. Good in the sense that I’m not going to have to buy much of anything and bad both because I love shopping for him and he’d not grown much. He probably weighs somewhere in the 18 1/2 lbs area now. A checker at Wal-Mart, with a child of her own no less, thought he was a little older than SIX MONTHS. Ouch. Most of his friends that are 10 months old are bigger than him. That’s cute, but not good. Why isn’t he growing??? I think natural trust in God is not part of my personalty. I like to know things, do research and figure it out. This is not something I can do on my own, so I just start to revert to pointless worry. That isn’t from God so I turn to him so he can help me NOT worry and learn to trust in him in all things, not just the easy-to-give-him-dept. It’s an every day struggle for me.

All in all, everything is going good. he’s progressing slowly, but it’s still progress! I’m filling out the paperwork to see a genetics specialist at Little Rock Childrens and my doctor still wants to do a MRI on him before the end of the year. I haven’t gone back to the eye doctor, but glasses in the future are a huge possibility. He is happy and charming and loves life which is then very contagious for both Ben and I. I can’t imagine living without him and all the joy he has brought me. Please keep praying for PROGRESS and GROWTH, both mentally and physically! Thanks!

  • David and Katy

    thanks for the update, its hard to get all of those details into a phone conversation. i’m glad he is progressing and I can just imagine him in his therapy session ignoring his therapist with his charming ways :) haha and your right, he is delightful and a light to all who see him, Miss him terribly!!