THE Eye Appointment

OK, the hard blog to write. I have to be serious, no joking away the confusion and fear that I have. I’m also angry

Please forgive me those of you who are knowledgeable in this area if I say conflicting things about what is wrong w/ Summit, I’m still trying to understand it myself, and don’t quite have all the terminology down. Basically as I understand it, Summit is going to have to have eye surgery to re-attach the muscles. His brain is beginning to “turn off” his left eye so right now we have a patch on his good eye. Complicating everything is the fact his optic nerve was “pale”. Neither a good thing or a bad thing at this point, the eye patching will let us know in 3 weeks if the optic nerve is damaged by the way his “bad” eye looks after being the primary eye. If there is no damage, GREAT, onward to surgery! (Which scares the CRAP out of me) If there is damage… well, that is a whole new battlefield.

So, my poor baby is patched up like a pirate! There, some humor! He looks so pathetic and sad. :( I’m thinking of drawing a skull and cross bones on his patch to make him feel cooler. I am babying him more too… not good… when he falls over when he is sitting and starts crying… I RUN to pick him up! Geez. What am doing? Is it wrong to baby him? Probably. I’m just coping right now. I am spent, exhausted, emotionally drained, etc. etc. etc. You know when you are at the grocery store and you see a special needs child and send up a prayer, “Thank you God that my baby is perfect.”? Maybe you are a better person than me, I think that a lot when I see that. I feel like now I’m that person. The one with a kid w/ an eye patch. I’m trying hard to be optomistic, don’t think I’m too depressed, I’m just kind of venting right now, I’m ok, really! I’ll keep you informed in all things relating to his eye.

  • Sarea

    Oh Heidi!! I can’t imagine, I had no idea it could be that bad. You are handling it great, and your instincts are correct, stick with them. I bet he looks adorable with that patch on though!! lol Can’t wait to see it.

  • Anonymous

    I’m joining you in the ANGRY mother crowd. Lucy’s mothers day out teacher gave me a mini-lecture about her walking. I said I had a dr. appointment on Tuesday. I’m impressed that you’ve blogged about it. I’m still in the defensive-shut up stage. And I have to go because Lucy just ate a half a thing of chapstick.

  • WiredForStereo

    Our thoughts and prayers are with you, and we are saying that in a real sense, not in one of those stupid “you are having problems so here’s our meager attempt at commiseration” ways, I mean our thoughts and prayers are actually with you.

    Wow, it’s a horrible world when you have to make that distinction.

  • chadcate

    I’m praying for you. Ashlen said she won’t mind the patch–she digs pirates. Kim